I was worried my two children might have had TSW– as many describe, extended use of increasingly potent steroids on their wee little bodies only seemed to result in MORE eczema appearing in places they had never had it before, and every time we stopped the steroids, the eczema always came back worse than ever almost immediately. Plus, though they had always responded well to the steroids, the eczema was starting to break through even whilst we were still using them. I researched like crazy, read about TSW and ITSAN, was terrified that they might be addicted to the steroids and that the only way to help them would be to put them through hell first. We stopped the steroids for two weeks while I tried to figure out what to do (their eczema was rampant and horrific during this time–my toddler could not sleep for more than two hours at a go and they both scratched CONSTANTLY). Thankfully, I saw a post that a friend had written on one of the eczema boards about how TSW was not the only way and that there was a gentler route. I contacted Dr. Aron and have never looked back.
My eldest is 5 and doesn’t have a sign of eczema anywhere on her body and hasn’t for 7 months bar the odd dry patch which we’ve treated with diprobase or one dose of Dr. Aron’s mixture. She is on one app every 5 days, though I would hazard a guess that she doesn’t need it. We are sticking to it over the winter though on Dr. Aron’s advice–he knows his stuff and I have long since learned to trust him despite the fact that I thought I might never trust another dermatologist again.
My youngest is 2 now and still has flares, but the major HUGE difference between her eczema now and her eczema last year is that these flares can be easily linked to a trigger (usually a virus), are mild compared to before, and they PASS, quickly and without major incident and we get back to using minimal cream to maintain her good skin (once every three days). We have stepped down applications of the medicine successfully where we never could before without rebound and now her eczema is manageable and she is living a normal life. And she sleeps all night every night!
My view of steroids and, by connection, TSW is that steroids are an excellent medication for the treatment of eczema WHEN USED TO THEIR BEST ADVANTAGE. I don’t think applying neat potent steroid to raging eczema WITHOUT treating the underlying infection that Dr. Aron so neatly summarises in his opinions on the condition is at all effective. I don’t think the steroid in any way is causing the eczema or causing it to worsen, but it isn’t living up to its full potential as it does when applied using Dr. Aron’s mixtures and routines. I also think that many, many supposed cases of TSW are actually seriously out of control eczema.
I do NOT think there is a cure for eczema–the nearest thing is to put it in remission, as Dr. Aron often does (in the case of my eldest daughter) and/or to control it, which Dr. Aron almost always does (the only time I’ve heard of him being unable to help was when there were other complex medical issues involved). I think those that do manage to achieve good skin and few to no flares with TSW are only managing what Dr. Aron does, but at a cost of great suffering.
In the course of the last eight months, I’ve gone from viewing steroids as something rather dark and fearful to something fairly innocuous. They aren’t the big bad guys that many people say they are–a lot of conclusions have been jumped to about steroids without, as far as I have researched, a great deal of hard evidence verified by a significant body of trained professionals. Lots of assumptions, but not a lot of fact. Of course, just as any medication or treatment should not be undertaken lightly or without professional guidance, I give steroids proper deference. But they are just a medication. They sure as hell are a million times better than immunosuppressants, with their verified, serious risks. As a last resort, I understand, but I cannot understand how people pursuing clear skin through TSW think that immunos are preferable to steroids.
Dr. Aron’s treatment offers the achievement of the same goal as TSW but under the supervision of a highly trained, highly practised medical professional who REALLY understands how these medications operate and how to use them to achieve the best results. And his results are much more reliable and much more quickly achieved–how many people have I heard about lately who have been in TSW for years??? Madness! How long before a person concedes that it isn’t working? I would recommend Dr. Aron to ANYONE pursuing TSW who has any doubts about their current path to healing.
I think about this a lot, especially when I see/hear some of the suffering that goes on in TSW. I wouldn’t wish that on anyone, certainly not when there is such a brilliant alternative. And just in case anyone is wondering, I am just an ordinary mum living an ordinary life and I get absolutely nothing from recommending this treatment or spending so much time advising other people other than the pleasure of knowing that yet another child (or adult) will find some relief from the horror of eczema.